M.S. Rebel one of many...

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08-10-10   Had to have a blood test yesterday to check on my thyroid levels, the adjustments seem to kind of be working but I still feel that pressure in my throat. I have some relatives who also have some thyroid problems and they need to have blood tests on a regular basis. No biggie. But I still feel great and so clear headed since I stopped eating those foods I tested positive to as food intolerances. Feeling great in Lisle! ~ Lisa

08-06-10   The adjustments continue with the thyroid meds, trial and error. I'll just have to keep paying attention to how my throat feels. Hopefully this new level will be it, only time will tell. I am still amazed at the amount of energy I have and the only treatment I am using is avoiding those 29 foods. I will be so excited to get he results back from my hair analysis, hopefully next week. My brother Bart is going to have this hair analysis done as well, he does not have MS but is having some aggravating skin symptoms and the docs really don't seem to be helping so I convinced him to give this a try. I will list his results here too if anyone else is interested in reading about it.

Have a great weekend! ~ Lisa

07-30-10   I am finally finding the right level of meds for my thyroid, yahoo! I am still noticing changes with getting the feeling back in my hands and feet. With my feet I am noticing feeling the cold tile floor in the bathroom more on my left foot than my right foot, which I guess makes sense since the right side of my body is more affected than my left. I will continue with avoiding those foods the blood test I had done showed I have an intolerance to. I will be very interested to see the report on my hair analysis for food intolerances. I just got thinking, I would like to compare the results as much as possible because t is much less expensive than the blood test and I know many fellow MS patients who have difficult to find veins and would definitely prefer cutting off 5 hairs and sending it out. I will be honest in letting you know that because of my financial situation I asked the people at Test your intolerance USA if they would be willing to do my test for free and in return I will show my results on my website. Here is a copy of that email so I do not misspeak;  

Lisa
Thank you for your enquiry. As you can imagine we receive numerous requests for free tests and it is not possible to satisfy everyone's request. 
I have decided on this occasion to forward a pack for you to complete your hair sample and receive your test for free in return for it being published on your site.  I would just give a couple of warnings about comparing it with a blood sample test.
Firstly, depending how long it is since you received your previous test, intolerances do change, unlike allergies. This depends on your immunity level etc. 
Secondly it is now finally being proven that samples from a hair sample are much more accurate due to the length of time a hair sample remain live with full data.  A blood sample commences to die the moment it is removed from the body and is normally dead within 2 hours.  A hair sample is estimated to have 3 months of live data for every 1/2 inch of hair. When sampling body hair it is estimated even the shortest hair has 12 months of data. It is for this reason that hair sampling is now the preferred method for drug and alcohol sampling used by the courts.
I hope you find the results both interesting and useful.
Andy

I am feeling so darn good, it's almost eerie. It kinda makes me sick to think if only this testing were around 35 years ago, I really think my MS would not have escalated this far. Of course I feel I should not complain too much, I am still able to walk with my cane unless the weather turns super hot then it is time for the wheelchair. The only MS drug I would use if it were FDA approved is that SF1019 vaccine that I was so fortunate to be able to use for 13 months thanks to the touch football game my brother Brian and friends play in my honor. Some other family members were able to help too until the economy changed. Oh well. It really helped a lot, it got rid of my vertigo and I had tons of energy, I miss that! Hopefully it will be approved soon, but in the meantime eliminating those 29 foods from my diet I know is working, at a snails pace but I can wait. This is the most hopeful I have felt in decades about having some degree of recovery. My hair analysis is being sent out today, it goes to the UK so I'm not sure when I will receive my results but you can be sure I will list them here. I realize I have become obnoxious in speaking about the food intolerances but it is difficult for me to not spout on about it now that I am truly noticing changes. I wish I had written down all the dates I would have that "something feels different" feeling so I could try to see if that feeling seemed to equate to some type of recovery. Geez did that even make sense? I am noticing the fog lifting from my brain, and just now sitting at the computer I can feel my butt feels like it is waking up, yeah that sounds a little weird too. I'd say my soapbox will be food intolerances, I like facts and it appears to me that blood cannot lie, nor can DNA and if those tests show I have certain food intolerances it seems logical to me that I should try to stop eating them. If I had an allergy to any of those foods I would have to stop eating them or they would kill me. This link can explain it much better than I ever could. http://www.foodcanmakeyouill.co.uk/index.html For me this is the most difficult treatment I have ever tried, but now after 16 months of elimination 95% of those foods I am absolutely seeing differences and will stay away from those foods as much as possible. I had a couple slices of pizza a while back and everything on that is an intolerance for me. Cow's milk, yeast and wheat, so that cannot be a regular occurrence. It's a bit easier to handle now that I am seeing results, though very slowly, I notice them as well as my son and other family members. My energy level is obviously better because I actually am excited to do the dishes! My sleep is still not great (3-5hrs) but I still have energy. My energy was much better when I was able to use that vaccine, but since that is not the case I will just stick to the food elimination since that appears to be helping. I wish my friend Scot had been able to have this testing maybe he would still be with us, he didn't even make it to 40 and he was a very slim man. It would have been interesting. My hope is that some of you will check into this information and seriously look into having this hair analysis test done so you can see what foods your DNA shows you should probably stay away from. For me I know the Neuros I saw told me food has nothing to do with MS, I wish I could show them the proof I have that it does. I believe now some Neuros are changing their thoughts about that, like Perl Health (Dr. David Perlmutter).  I like his thoughts about HBOT as well in circulating the stem cells that are already in our bodies. However again, HBOT is not covered by Medicare for that type of treatment and unless a patient has insurance that covers that you are SOL. (I think you can figure out that acronym)  LOL  Okay, I think I am done babbling for now I hope you find this information helpful or at least interesting. Never give up! ~ Lisa

07-06-10   I'm still dealing with the hypothyroid, my energy level went down substantially. However, I really feel my diet over the past 15 months of avoiding the foods my blood showed an intolerance appears to be paying off. I know that is simply my opinion but I have been experiencing some pretty awesome changes. A couple days ago I slept extra badly yet I could feel my hands & feet waking up! I remember having the feeling sometimes when my hand or foot would fall asleep and after a while I would shake that limb and it would start waking up, that is the sensation I am experiencing.... I like it!!! I have a long way to go and I do realize I may never get my balance back, but there is no doubt that I am experiencing some amazing changes. I will continue to stay with avoiding those foods, and see what else happens. My brain fog is lifting, I can't believe how clear headed I feel. I understand that Hypothyroid can cause fuzzy thinking, however that brain fog has been in my brain for years...? This dietary change is not particularly easy, but I am so glad I made the change. The Neurolgist I saw when I was hospitalized for vertigo back in 1984 told me diet has nothing to do with MS, as did the young new Neuro I saw briefly about a year ago. All they suggested were the ABC drugs and other garbage that does not work, I will need to presume that kick backs play a role in that! How could they make any money if we just stop eating foods that our bodies cannot tolerate? I've had MS since I was 13, I guess I've gotten a bit bitter. What happened to do no harm? I will elaborate on symptoms I feel relief form on my blog if you would like to read more.

Never give up! ~ Lisa

06-22-10   My blood test results showed I have Hypothyroid. Where my T-3 hormone levels are unusually low so I am now taking a compounded treatment to raise those levels. It has been less than a week but I have an abundance of energy and have even lost 3 pounds! I love that blood does not lie, I trust those tests quite a bit! I know I go on ad nauseum but for the past year I have been using diet as my MS treatment, staying away from those foods my blood showed I have a intolerance to. I'm getting around so well even though it is summer. Of course summer has just begun so I'll have to wait and see if I will get symptoms like vertigo or weakness, so far so good, I'm amazed! I hope to also see if I notice a difference in my balance after having some HBOT treatments, since that is supposed to help in circulating stem cells that are already in the body. All in due time as the saying goes. I am feeling very hopeful about the future! Never give up! ~ Lisa

  HAWKS WIN!!! HAWKS WIN!!! HAWKS WIN!!!

06-09-10   Hawks Win!!! Hawks Win!!! Hawks Win!!!  This is so awesome!!!  Have a great weekend!!! ~ Lisa

06-04-10   I am no fair weather fan...go Blackhawks!!! I will have my blood test on Monday. Have a great weekend! ~ Lisa

05-29-10   OMG! I'm so excited about tonight's game! I can hardly believe it! I'm still feeling exhausted but will be having a blood test this week to check my thyroid, I've never had that done before. Hopefully if that is part of the problem, meds can help. We shall see...Go Blackhawks!!! Have a great Holiday weekend! ~ Lisa

05-14-10   Life feels a bit better, I have not yet filed but am adjusting my thinking around this bankruptcy necessity....it could be worse. I will really have to practice meditation and working at not being so stressed. I will also stick to following my diet of not eating the foods I do have an intolerance to, keep using the LDN, B1 & liver extract IM injections, and soon this upcoming week HBOT treatments. My hope is that the HBOT therapy will "awaken" some of the stem cells that are already present in my body. I guess only time will tell, I've got plenty of time so we shall see. I will not be continuing with the BPT therapy since I do not have insurance I need to choose between HBOT and BPT, HBOT wins for now.  I feel I have felt quite a bit of difference with energy level even though it is still quite low during this past year since I began avoiding those foods my blood tested positive to for food intolerances. Of course I'm sure studies will need to be done to prove this theory...more waiting. In the meantime since I have had this blood test I will, continue avoiding those foods. I plan on trying the HBOT this next week at a local treatment center in Bolingbrook Illinois. I am hopeful but realize since I will not be able to have MRI's done on a regular basis for comparison, the results I will talk about on my site will be subjective. Hopefully I will be able to have some MRI's done to at least compare for myself. I will be hoping for obvious changes in my balance over the time I use the HBOT since I have read that it can help possibly activate the stem cells that already exist in my body. I hope I am explaining that correctly here is one link http://www.perlhealth.com/perlmutter-hyperberic-center/stem-cell-study  I am very excited to start trying this I feel at this point I likely will not ever have the funds for real stem cells so I will give this a try and list my results here as I always do. I really do just want to see if I can help my fellow MS patients with some of the info I have on my site. I wish Scot would have made it so he could try but that was not meant to be. Please be sure of course to run any info I have on my site that you might like to try past your docs. Never give up! ~ Lisa

05-07-10   My life has gotten incredibly stressful, long story but I will soon need to file for Bankruptcy. Actually I'm not so concerned about that, I just want to get it over with. Certain circumstances have left me with no choice. I need a fresh start and hopefully starting back on the LDN will help keep symptoms at bay. A few years ago I used it at 3 mg, this time we will try 3.5. So hopefully with the diet changes and the LDN I can make it through the coming summer heat with no big problems. I realized too that I have not mentioned that for several years I have been consistently using B1 & liver extract IM injections. That seemed to help during the summer months. Here is a link http://www.quantumbalancing.com/news/klenner_ms.htm  I know this treatment is not for everyone, it is a muscle shot, I had to crank up the music the first few times to have the guts to stuck the needle in my leg or arm, but once the needle is in the muscle I had no choice but to inject. I plan on staying with the Klenner protocol and adding the LDN. This disease is a huge pain in the neck, with no agreed upon diagnosis but I'll keep trying to find what may work for me. Never give up! ~ Lisa

04-23-10   I probably will just stick to following my dietary changes according to the blood test I had that showed the 29 food intolerances which I know some of you are sick of me going on and on about it. I apologize for that but to me it sure seems awfully coincidental that those particular foods that I have been eating pretty much since the day I was born seem to play a role in why I have developed MS. I started thinking maybe the foods I tested positive to are the foods I really like and have eaten consistently. (blueberries, almonds, cheese, cherries, cranberries, lettuce, tomatoes, wheat, just to name a few) However, I  had never eaten Quinoa before yet it is one of the foods I tested positive to. One day when my brain is more lively and able to retain information better I would really like to educate myself through classes concerning food intolerances so I know exactly what I am talking about! In the mean time I will just stick to my new way of eating. Hopefully I can get my young new Neurologist to see that foods really do play a role in MS, and if he is looking for a mentor Neurologist to look at Dr. David Perlmutter. He does believe that foods play a role in MS, I think we need more open minded Neuros like him! I also have some info about Dr. Perlmutter and his view on how HBOT increases stem cell circulation within your own body. I would like to try that one day as well to see if that can help my lesions to heal. ? It would be interesting to try. Stay tuned...~ Lisa

04-17-10   I ended up not going back for further BPT treatments simply because of lack of money. My brain sucks and I keep screwing up my Medicare benefits, right now I only have in-patient coverage. I have to figure out what I can actually afford. So on that note finding out about if I actually have CCSVI will have to wait. I know I go on and on about the Human Blood print blood test I had done thanks to my brother Brian and friends, but I do like facts and this blood test showed me that there are some foods I need to stay away from. I wish this test had been around when I was 13 when the "fun" began for me. Since it was not, I will now just stick to it now. I certainly do not expect that in a matter of a few months, or maybe even years I will be all better. That just does not seem logical to me, I have many, many lesions in my brain. From reading more and more about cord blood, and some of the MS patients who have been fortunate to have used this therapy, that may be the one treatment that could help most. I hope to be able to try it in the next few years once I have the money saved. I guess only time will tell. Never give up! ~ Lisa

04-12-10  I still do not have much faith in Neuros, I know they are very educated but I really do not like the pushing of those worthless ABC drugs! I've known way to many fellow patients who used them 'til the day they died, of course died being the operative word. I will forever believe what my blood test showed when  it comes to food intolerances because blood cannot lie! One day I will have that test done to check for CCSVI but for now I will stick to what I can afford. Tomorrow I will be starting BPT. My energy level is very low I'm certain mostly because I have such a difficult time with falling asleep. For now I am using Temazepam 30mg which seems to be helping a bit, at least  can fall asleep! My brain still is fuzzy, difficult for my brain to wake up. I just started using BPT on the 13th and will have another treatment tomorrow. I do feel a bit more perky today, it is a very fascinating treatment, interesting to watch my blood being "cleaned". My vein is hooked up to a device, it takes about 45 minutes, only time will tell.  ever give up! ~ Lisa

03-30-10  I at the moment do not have any great faith in Neurologists. The only one I have read about that seems to be any good is Dr. David Perlmutter out of Naples Florida. http://www.perlhealth.com/    http://www.renegadeneurologist.com/bacterium-linked-to-multiple-sclerosis/   maybe it will work better now that I stopped eating the foods that my blood test showed I have an intolerance to. ??

http://www.renegadeneurologist.com/?s=ms+and+HBOT   this sounds fascinating too!

I'll update the next time I have energy. Cya ~ Lisa

02-07-10  I am going to try to find Neurologists in the local and Chicago area who have an interest in that new CCSVI theory since I do have varicose veins that run in my family. It sure cannot hurt. I think maybe we have to take things in our own hands, I'm sick of waiting! This does appear to be quite a new theory, I know Dr. Zeidman had not heard of it before I mentioned it. So I am going to send some letters out to some local and Chicago land Neurologists to see if they have heard of this and if they would be interested in taking me on as a patient. It will be interesting to see what happens. It would work better if I could simply fall asleep. So hopefully a doctor will take me on! I'm so tired!

I'm still not ready to give up! ~ Lisa

01-23-10  I have decided to not continue treatment with Dr. Zeidman and resume treatment with Dr. Ayre. Dr. Z wants me to get back on one of the ABC drugs. My experience with those is not very good. I know I am not a doctor, but most doctors do not have MS so they have no real experience as we do. Every Neuro I went to had no belief that diet has nothing to do with MS and that Dr. Swank was a crackpot. Well, now that I have had a blood test  that actually shows for a fact that I have an intolerance to 29 of 154 foods tested. For me, gluten is not one of them although wheat is, if you would like to see my blood test results click here. It seems to me that MS is not just caused by one thing. I believe food plays a major role, but now there is this new theory about MS possibly also being a venous disease. I know for myself, some of my family members have MS, epilepsy, possibly Aspergers so it appears our family has a tendency towards Neurological problems. Definitely varicose veins run in my family, in a cousin, my mom, her late sister, my brother Brian who had them fixed as did my cousin. I have one varicose vein on my right inner thigh so it could be a real possibility that CCSVI could be a problem for me as well. Finding that out will have to wait because I screwed up my Medicare and it will not be accessible until July. Though thanks to my brother Brian and some friends from the Lisle Senior High School class of '79 they raised some money for me by playing a touch football game called the Turkey Bowl, this past year was #XXXIV! The raised quite a bit, but not quite enough, that is where Medicare will be a necessity. I hate the heat of July but will be excited this year so I can have this CCSVI test done. If that does not complete my recovery I will look to cord blood stem cells...again big bucks will be needed so I will be a dork and keep playing PCH, I figure what the heck. I read information which was lost when one of my computers crashed a few year ago about 2 MS patients from England who had the chronic insomnia and OAB that I have and they had the cord blood treatment done and they could once again sleep and also had no more OAB. I realize this is just internet info but I would try it in a heartbeat, I'm so tired of not being able to sleep. I'm 47 and easily look 57...depressing! But I will never quit trying! I'm not in great shape, though I am very fortunate in that I can still walk to a certain degree with walls or my cane. I have zero balance, I believe that is where stem cells might be needed. It may sound silly but if it works the way I hope maybe other MS patients can see my recovery, though it will likely be very long and have hope for the future. I know this is going to take a long time since I did not get started with the dietary changes when I was 13, when this all began for me. Will I ever be able to run again? I never liked running anyway, but I would love to take my dog Daisey for a walk...my dream! Patience will be the name of the game! Never give up! ~Lisa