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02-07-10 I am going to try to find Neurologists in the local and Chicago area who have an interest in that new CCSVI theory since I do have have varicose veins that run in my family. It sure cannot hurt. I think maybe we have to take things in our own hands, I'm sick of waiting! This does appear to be quite a new theory, I know Dr. Zeidman had not heard of it before I mentioned it. So I am going to send some letters out to some local and Chicago land Neurologists to see if they have heard of this and if they would be interested in taking me on as a patient. It will be interesting to see what happens. It would work better if I could simply fall asleep. So hopefully a doctor will take me on! I'm so tired!

I'm still not ready to give up! ~ Lisa

01-23-10 I have decided to not continue treatment with Dr. Zeidman and resume treatment with Dr. Ayre. Dr. Z wants me to get back on one of the ABC drugs. My experience with those is not very good. I know I am not a doctor, but most doctors do not have MS so they have no real experience as we do. Every Neuro I went to had no belief that diet has nothing to do with MS and that Dr. Swank was a crackpot. Well, now that I have had a bloodtest that actually shows for a fact that I have an intolerance to 29 of 154 foods tested. For me, gluten is not one of them although wheat is, if you would like to see my bloodtest results click here. It seems to me that MS is not just caused by one thing. I believe food plays a major role, but now there is this new theory about MS possibly also being a venous disease. I know for myself, some of my family members have MS, epilepsy, possibly Aspergers so it appears our family has a tendency towards Neurological problems. Definitely varicose veins run in my family, in a cousin, my mom, her late sister, my brother Brian who had them fixed as did my cousin. I have one varicose vein on my right inner thigh so it could be a real possibility that CCSVI could be a problem for me as well. Finding that out will have to wait because I screwed up my Medicare and it will not be accessible until July. Though thanks to my brother Brian and some friends from the Lisle Senior High School class of '79 they raised some money for me by playing a touch football game called the Turkey Bowl, this past year was #XXXIV! The raised quite a bit, but not quite enough, that is where Medicare will be a necessity. I hate the heat of July but will be excited this year so I can have this CCSVI test done. If that does not complete my recovery I will look to cord blood stem cells...again big bucks will be needed so I will be a dork and keep playing PCH, I figure what the heck. I read information which was lost when one of my computers crashed a few year ago about 2 MS patients from England who had the chronic insomnia and OAB that I have and they had the cord blood treatment done and they could once again sleep and also had no more OAB. I realize this is just internet info but I would try it in a heartbeat, I'm so tired of not being able to sleep. I'm 47 and easily look 57...depressing! But I will never quit trying! I'm not in great shape, though I am very fortunate in that I can still walk to a certain degree with walls or my cane. I have zero balance, I believe that is where stem cells might be needed. It may sound silly but if it works the way I hope maybe other MS patients can see my recovery, though it will likely be very long and have hope for the future. I know this is going to take a long time since I did not get started with the dietary changes when I was 13, when this all began for me. Will I ever be able to run again? I never liked running anyway, but I would love to take my dog Daisey for a walk...my dream! Patience will be the name of the game! Never give up! ~Lisa

11-28-09 The vertigo has mostly subsided but I believe I should have started using a higher dose of prednisone from the beginning probably 60 - 80mg instead of 50. I'm seeing slightly double and sometimes feel a little "spinney". I am so used to how Dr. Glassenberg my first Neuro in '84 prescribed prednisone, high doses like 80mg, 60mg, etc. Dr. Z is not familiar with what I am used to, a different generation. I think we may but heads on this one but I hope to change his mind in my case to keep taking prednisone at a little higher dose for a bit longer. We shall see. The Turkey Bowl was a blast I was told, my son AJ was a great representative! I was not well enough to attend, it is difficult to get out of this house with my legs being weaker but I am very excited about this new MS theory about MS possibly being a venous disease rather than auto immune, of course this will be a whole new ball of wax. Doctors will I'm sure dispute this theory, but I'm going to do my best to have as many Neurologists I can think of to at least seriously check into it. I will continue to stick to avoiding the foods I tested positive to as a food allergen from the Human Bloodprint, blood does not lie! This is a frustrating disease to say the least, but little by little things appear to be coming together. Stay tuned and Never give up! ~ Lisa

10-02-09 My vertigo has returned again, it seems to do that when I have such a terrible time with falling and staying asleep for more than an hour at a time...so damned frustrating! That symptom slowly began in '98 and by '00 I was using Xanax, I will lay there literally all night and not fall asleep. I have recently found a local Chiropractor that does interesting treatments that I had never heard of. I never believed in chiropractic care before this, but I am so desperate to just be able to fall asleep, this is Dr. Serpe's link http://napervillebbt.com/insomnia. I am still not quite sure what this treatment will be, but from looking at my last MRI in '00 it appears that is the area of the Mesencephalon that could be continually firing. I have also never had my adrenal glands tested, he will likely test those as well. I found this link about the over firing Mesenchephalon. I will be very interested to find out if this is my chronic insomnia problem, it has been too many years (9) of this ghastly insomnia. I will write about this on Tuesday, I see Dr. Serpe at 4 pm on Monday. Have a great weekend! ~ Lisa

09-04-09 I did start taking Stem Enhance again, I'll try that for a couple months to see if I notice any differences.? I really messed up my website as I often do, sorry 'bout that. I wrote everything down after speaking with my new web host, they 'bought out the old one. It is all so confusing to my brain, I did remember that it was August when I needed to renew I just get so confused since I have never been formally trained in this. I will try harder next August to get things running smoothly with no interruptions. My legs are still quite weak after having the acupuncture, I was using prednisone for quite a while, which works quite well for me, but I could not stand looking in the mirror at my incredibly bloated face so I stopped taking it and have been using Turmeric which is something like a natural steroid, it has not worked very well for me. I admit I wish I were rich and important like Alan Osmond, because that SF1019 vaccine worked wonderfully. To my knowledge it has not been FDA approved yet, but since I couldn't afford it anymore I am not in the SF1019 loop. Hopefully it will be approved soon it could help so many people, and not just MS patients. Have a great Labor Day! ~ Lisa

08-07-09 I stopped the acupuncture after having a treatment that left my right foot hurting so much, it pretty quickly led to my needing to start taking prednisone because my leg just kept getting weaker and weaker. The summer heat has unfortunately finally arrived din the Chicago area...yuk! I am sticking to these dietary changes, I truly believe that this is the way. The dietary changes will take quite a lot of time depending on how long you have had MS symptoms. It has been 34 years for me so I am under no delusions that this will probably take years and who knows I may still need cord blood treatment one day, but only time will tell. I'm not going anywhere so all I have is time, I am learning patience. I may also start taking Stem Enhance again if my mom can help with the cost. Who knows? Never give up! ~ Lisa

05-30-09 I started acupuncture this past week, 27th & 29th. Very interesting, I felt really energetic yesterday after the treatment, it doesn't really hurt so much a pinch and sometimes I felt nothing. It may be helping with my chronic insomnia I did sleep quite well, though I did take 1 xanax . In the past when taking xanax I would need to up the dose because my body would get used to it, so I'm thinking the 1 should not have helped at all. Maybe the acupuncture is working, I'll keep using it for now thanks to my mom! It is very interesting. The idea if I am understanding it correctly is to unblock the energy (chi) so it will flow freely throughout he body and aid in healing. Only time will tell but I am hopeful. Cya ~ Lisa

05-22-09 I am still sticking to these dietary changes, but I stupidly ate a piece of pizza the other day, just cheese. I woke up in the middle of the night feeling like I was going to vomit I even grabbed a bucket just in case. It was very uncomfortable for about an hour (2am) then I decided to move to the bathroom I never did vomit but I felt really sick for a few hours. That was it for falling back to sleep which usually does not happen very easily anyway. Of course I can't really prove it but I really believe I felt that way because everything I have an allergen to was in or on that pizza. I always ate pizza often in my youth, I wish I knew then what I know now. I may not have an allergen to gluten, but if I ever have pizza again it will be a gluten free pizza with no cheese because there is no wheat or milk used in the gluten free pizza the things I do have an allergen to. I will be changing my links around this week, combining or eliminating some of them. I may also be adding back the MS polls page if I get a response that shows people are interested in taking them, that will be my first poll. My energy is getting better but I don't want to waste what energy I do have typing up polls that no one has an interest in taking, I think most of you understand that. So let me know if you would like to see the polls page back. The a/c unit has not yet been put in the computer room window so I will update more pages tomorrow it is getting warm in here.

Have a great Memorial Day weekend! ~ Lisa

05-02-09 I realize for many MS patients that changing ones diet seems absurd (I was one of those people) I always figured that if my Neurologist did not believe that diet change would help then it probably would not. I know I am not a doctor, just a high school graduate with many scars in my brain! I decided after reading many books written by people with MS who claimed cure by simply changing their diet that that seemed awfully coincidental so I decided I would give it a try. It appeared to be helping a bit with numbness and such, but then I started to remember Dr. Morales suggesting I have the Immuno 1 blood print done to check for my true food allergens. That was when I went to him in Tijuana to get started on the SF1019 vaccine back in '07...the vaccine worked great, I can only assume it still works according to Alan Osmond. Dr. Morales quit prescribing the vaccine after they switched to using synthetics, I never used that new version. I completely forgot all about that blood test. I'm glad my scarred up brain finally remembered about this test. If you frequent my website this probably sounds like a broken record but I feel this is the best way to keep MS symptoms under control and certainly works best if you can get started early-on. I am far beyond early on but I can still walk with my cane, and sometimes without. It will be interesting to see how the summer heat affects me, I will be cautious about it since the heat and I have not gotten along well for many, many, years. It will be fascinating to me to pay attention and "see" if I notice any major differences with the heat since I have found out my true food allergens. Though I do not plan on laying out in the direct sun any time soon, but it will be interesting if I notice I can tolerate the heat any better than I have in the past. The one thing I would really like to try one day in the future is to go to the one Neurolgist I trust most, who at one point in '00 left his practice for a year to try his hand at research. I would be curious to pick his brain to see if he would be interested in doing research into MS and diet the thing he never believed in when I last went to him (1984-2002). He is a scientist after all, so very soon I will write him a letter and ask if he would be interested in taking me on as his patient again, after all it has been 7 years since I last saw him, but I think he will remember me. The down side will be that I do not have insurance, and the last MRI I had was in '00. My energy is not the greatest, though that could also be because I am going through peri-menopause. I will be looking for a Gynecologist so I can get my hormone levels checked, rectifying that will hopefully give me energy that I so lack. My biggest hope is that other MS patients will get their blood tested for food allergies and see how that helps them out with keeping their symptoms under control. My memory short & long term seems to be better since I started taking the Neuro-PS , of course I have no scientific proof for myself, just my experience and the information from Dr. Kidd's book that was sent to me when I ordered some different vitamins from Puritanspride.com. It is quite interesting to read about and Dr. Kidd has done double blind studies and other research. I sure wish life was easier, but I guess this is my lot in life. I could not help my friend Scot, but maybe I can help other MS patients by sharing my experiences now that I can see for a fact which foods I have a true allergen to.

Never give up! ~ Lisa

04-24-09 I am so glad I had the Human Bloodprint done!!! I wish it had been able to take it when I was 13, I probably would not have advanced as far as I have. Though I do feel I am still pretty lucky I am still able to walk albeit with a cane. Too many of us have died because of this disease, many like my friend Scot, who was far too young! That just pisses me off and that must stop! I hope you will join me, and other MS patients in having this Human Bloodprint blood test done. That test will show you exactly which foods you have an allergen to. Then you will be able to replace those foods with the foods you do not have an allergen to. I have been eating primarily a gluten free diet for around 3 years now. I love blueberries, and almonds so I have been following many of the MS Diets that have been written by other MS patients, and even the late Dr. Swank and many of the foods suggested are the one's I do have an allergen to. I was stunned when I saw I have an allergen to blueberries & almonds! Don't get me wrong I feel the people who took the time to write these books to share their experience with other MS patients did a great service! Though I also now feel that this blood test will help even more, I like facts and this test will show which foods each individual needs to avoid for a fact. The offending foods can be reintroduced to see if your body can tolerate them with a rotation diet. I have also not been needing to take prednisone for about 10 days, maybe this is because I am not eating the foods that showed to be an allergen to me. I was eating almond butter, sometimes drinking almond milk, and eating lots of salads made with lettuce another food my blood showed an allergen to. Makes one think doesn't it? It sure is making me think. I did something Monday I never even thought about trying before. Garbage day is Tuesday so I help my son by getting the recycling ready for him to take out on Monday morning. We have 2 recycling bins, one of them was inside, and I could see the other one sitting in the driveway near the house. I debated and felt rather rested so I decided to go get that last recycling bin! I clipped the phone to my shirt just in case I fell, I took my trusty cane walked out the door (I should have counted my steps) guessing maybe 15-20 steps to the 5 steps up to the gravel driveway, about 3 steps to the recycling bin. I grabbed the bin in one hand and my cane in the other took the steps back down and then into the house...by butt was so sore! I was so excited that I did that, like a little kid taking their first steps! It made me feel like it really could be possible in time that I can take my dog Daisey for a walk! My low back has been a bit sore too since then but it felt so hopeful! I would guess that maybe Dr. Swank would have liked this blood test, it shows that there are food allergies and he was on the right track. Of course this is just my own opinion you will have to use your own. Never give up! ~ Lisa

I will be having a more definitive test on 03-17-09, the Human Blood print I will have the results in about 14 days, I am so excited! You will have to decide for yourself of course. It just makes me so angry that my friend Scot wasted away for no reason and another web friend took his own life, it's just too sad. I wish the Blood print had been available 10 years ago Scot would have had a chance. I realize it is hard to believe food can truly be the answer that is why I am having this blood test so I can show the results to my Neurologist and post my results here for all to read. I had stopped eating dairy & gluten for nearly 2 years and decided about 10 days ago to eat some cottage cheese, eggs & wheat bread and did notice my scalp was quite itchy. So I will be really interested to see what the test tells me. After reading the book they sent me "Toxic Food Syndrome" and some of the experiences other MS patients have had using this list of their toxic foods to avoid, I'm really excited to begin. Some stated their insomnia was relieved, even other diseases such as Autism, you may have heard or read about actor Jenny McCarthy's son and how his autism has improved since changing his diet. Asthma, arthritis, migraines and digestive disorders are also included as eliminating specific foods for each individual has helped relieve some of those symptoms. I will be very interested to see what happens for me..???.

Never give up! ~Lisa

We can never just give up. I know my blood serum tested positive to 29 out of 154 food antigens, but I also have Varicose Veins that run on my mothers side of the famiily. There is even better info about CCSVI at the bottom 2 links!!! Amazing!!!

CCSVI in Multiple Sclerosis: NEW-Website with MRI/MV instructions for your doctor

updated 02-07-10 see below in purple typing

Welcome to my Multiple Sclerosis website.