Non Facebook format CCSVI information
10-25-09 I realize not everyone uses Facebook, it can be a bit confusing and over whelming at times. So I will have links on my computer where I will have the exact same Facebook info on this exciting new information! It's a start! Please check back in a few days if you would like to read about CCSVI without using Facebook! ~ Lisa
10-29-09 I think it will be interesting to see how this will develop over the coming months and years, it sure seems hopeful to me. I believe we should remember this is very new information and will probably take the medical community quite some time to agree upon this type of treatment. It looks quite hopeful but since I have no insurance and rely greatly on the Turkey Bowl touch football game my brother Brian and friends play in my honor and I need to really investigate what I feel will help me most. I was also able to find out what foods I truly have an allergen to thanks to my brother and friends. The Turkey Bowl game has helped me in having all 9 of my amalgam fillings replaced, which initially was done so one day so I could have cord blood treatment by Dr. Frank Morales. I have not yet ruled that out in fact I am leaning toward that. This is a huge decision. I'm sure this MRI to check for CCSVI will be quite expensive, then what if I do not have it? Since this is so new, what do I do if I do have it, I will need to find a doctor who is willing to do a study, there is a lot to this that is why I am leaning toward having cord blood since my amalgams are gone. As I understand it if I still had the amalgams the stem cells would go directly to my teeth and not where they need to go (my brain). I'm attempting to be as systematic as I can, food allergens, amalgam removal, and next probably cord blood stem cells since cord blood is generally thrown away. If I had insurance the CCSVI would be doable, but it is also so new I do think it will be a wonderful thing that can be checked out when a patient is newly diagnosed, thank goodness for Dr. Rindfleisch's hypothesis from 1863!
10-31-09 The links below are finally working, I think my being able to sleep has really helped my brain to work!
Happy Halloween! ~ Lisa
Dr. Rindfleisch 1863 MS theory
Ashton Embry more info on CCSVI
Press release from Bologna Italy
Discovery of some CCSVI history
http://myhopefuljourneyintoactualmsrecovery.blogspot.com/2009/07/just-facts-about-ccsvi.html